Saturday, August 24, 2013

Storms

Moving to Louisiana has been quite an adjustment as far as weather goes. It doesn't snow here, like at home, and summers are sauna-like. All day, every day. Every time someone from home asks how the weather is, my reply is always "like a sauna". It hasn't rained much this summer. There are pop-up thunder storms in the afternoons, but they are very spotty, and most of the time, it's not raining at our house. Once in a while, however, we get a really good storm. It pours and pours and pours. Thunder and lightning, power flickers on and off. Diva is trying to climb into my lap or running around and crying.

This pattern of storms is parallel to my grief at this point. It has been 9 weeks since we found out Harper was gone. I don't cry every day anymore. Sometimes I go a week or more without crying, and then the storm comes. Yesterday was a stormy day.

It started out like normal, hanging out playing with Joey. We didn't have any plans, so we were home playing trains and cars and crashing things, like boys do. Then the phone rang. It was an 800 number, so I already knew it was either a computer or someone I didn't want to talk to, but I answered anyway. It was someone calling from our insurance company's pregnancy program. She wanted to check on the birth of my baby. I felt like I had been punched in the gut. In a not so nice tone, I stated that my baby was stillborn in June. She said she was sorry for my loss, but that I needed to answer some questions about the pregnancy and birth, to ensure that they didn't call me again. I answered them all in an angry tone, just dumbfounded that they were actually really asking me these things. After 20 questions was over, she told me she was sorry for my loss and to have a good day.

I threw down the phone and the tears just flowed like Louisiana rain. I was sobbing and sobbing and didn't know if or when it would stop. I was trying to be quiet, so as not to alarm Joey, but I couldn't. Joey kept asking me what was wrong, and I told him, "Mommy is sad". He replied just like any man does, trying to fix it, pulling me by the hand and telling me to come "have fun". I just couldn't right then. I had to let it storm.

I finally managed to compose myself 20 or so minutes later, and we went on with our day. Then, Steve came home from work and told me that Harper's headstone was done and we could go see it. So, we piled in the car, and drove over to the cemetery. The whole way there, I just felt like I was in the twilight zone. Who does this? Who goes to the cemetery with their 2 year old to see the grave of their stillborn child? It's just surreal.

We knew that she was the first baby in the new section of the angel garden, but when we got there, she already had another little boy buried next to her, and there was another hole waiting for a tiny casket. There's a sense of comfort that her body is not alone, but sorrow that other families are experiencing this pain and are members of the club that no one wants to be a part of. I took a couple of pictures, ran my fingers over her name, and we left.

For those of you from Rochester, the cemetery where Harper is buried is very much like White Haven. There are not huge headstones, the markers are flush with the ground, and most of them have vases to put flowers in. After we left, we went to try and find some decorations for her grave, but having a 2 year-old with you isn't exactly conducive to shopping thoughtfully. We gave up and decided I could try again after Joey went to bed.

I went to a different store later that evening, when I could take my time, and found beautiful things that were just right. Some purple, yellow, and white flowers, a purple angel, and small wind chimes with a yellow butterfly. The girl at the checkout commented how cute everything was. I didn't tell her what they were for. I was excited that I found things that I really liked, but just so sad that I even have to do it. I should have a 2 week old newborn, and be completely sleep deprived, not shopping for things to decorate her grave.

Through it all, God is still here. He still hears my cries, He still loves me, and He still carries me when I don't have the strength to go on. I bend, but I do not break. The storms come, but they don't consume me. I am knocked down, but I get up. Praise be to God!


Saturday, August 10, 2013

Dear Harper

Dear Harper,

Today is your due date. Instead of anxiously awaiting your arrival into the world, we are anxiously waiting for the pictures of you. We took your big brother to see his first movie at the movie theater today, in hopes of creating some happy memories on what is now a sad day. I am so happy that you are in heaven with Jesus, but I am so sad that I didn't get to be your mommy here for more time than I did.

When Daddy and I found out I was pregnant with you, we were a little scared. Two babies? Your big brother keeps us really busy, how would we do with adding another baby? You were very much wanted and planned, but it took us one month longer than we hoped to get pregnant. Daddy, Joey, and I all have July birthdays, and we wanted you to have one, too, but God gave you a different month. You made your presence known right away, even when you were too small for me to feel your kicks. Nausea, heartburn, and fatigue were my constant companions for the first 12 weeks or so, but I knew the end result would be worth it.

When we had our first doctor appointment, they couldn't find your heartbeat, but said it was still early to hear it with the doppler, so they sent us for a quick check with the ultrasound. Your heartbeat was perfect and strong, and you were exactly the size that you should be. From then on, we had our monthly appointments at home with the midwife. Joey always liked to help her take my blood pressure, and when it was time to listen to your heartbeat, Daddy and Joey would do a little dance to the rhythm of your beating heart. Grandma and Auntie Kay Kay also got to hear that most special sound when they came to visit.

When it was time to find out if you were a boy or a girl, I was nervous. Everyone told me they thought you were a girl, but I wasn't sure. God told me right away that your brother was a boy and that I should name him Joseph, but I hadn't heard anything from God about you. I was so used to being a mommy to Joey that I was nervous whether I would be a good mom to a girl or not. They did the 20-week ultrasound, and said you were a girl, and sent us back to the waiting room to speak with the doctor.

While we were waiting, Daddy and I talked about names. We wanted your name to honor your Nannah, and also to honor my side of the family as well. I suggested Harper Pauline. Daddy said, "That's it! I love it!" Harper was your Nannah's last name before she married your Papaw Larry. Pauline was my Grandma's first name. Paul was my Grandpa's first name and your Grandpa's middle name, so it was a way to honor all three of them.

As the weeks went on, I got excited about buying things for you. The walls in your bedroom are lime green, and I was too tired to paint them, so I decided to make that color work. We bought lavender curtains, a purple rug, and your crib bedding had a white background with lime green, purple, and lavender accents. Grandma was so excited about you, it seemed like she was always sending us packages of clothes in the mail. Aunt Shelley made you a special quilt with your name on it, and Granny Ann bought you a pretty pink dress. Auntie Kay Kay bought you an LSU dress, an essential for any little Tigers fan.

At the end of May, Daddy took Joey's crib apart so that we could use it for you. Your big brother did great switching to a big boy bed. The first night was interesting, but he has done great ever since. He is such a sweet, loving, smart boy. I knew he would love you so much and be the best big brother. He does not understand what happened yet, but I promise I will explain it to him when he is old enough to understand. He will always know that he has a little sister in heaven that can't wait to meet him.

Mommy is trying so hard to not be sad, because I know you are not sad. You never had to endure anything difficult in this life, you were safe in my tummy while you were here. I wondered if you would have curly hair like me or straight hair like Daddy and Joey. We already knew you would have blue eyes, just like the rest of us, and no booty, just like the rest of us!

I was so looking forward to having you here with us - rocking you, cuddling you, watching you sleep, seeing all of your firsts - smiles, rolling over, sitting up, crawling, walking, talking. What would your first word be? Would you be as obsessed with dolls and princesses as your brother is with trains and trucks? Would you be a tom-boy or a girly girl? Or somewhere in between? I dreamed of doing girly things together when you were older - shopping, pedicures, tea parties. Would you want to wear dresses and skirts all the time? A tutu? (Even though I had no intention of buying any).

I will never know the answer to any of these questions. What I do know is that you are in heaven, and I will see you someday. I will get to be your mommy for eternity someday. I hope you know how much you are loved. Mommy misses you every second of every day. My heart hurts and it will never go away until I can see you again. You will never be forgotten. I love you, my sweet baby girl.

Love,
Mommy


Thursday, August 8, 2013

Forever changed

I am forever changed. There are many events in one's life that can be described by this statement, but none more so than losing a child. I get up everyday and do the "normal" mom stuff - making breakfast, playing with Joey, cleaning, playing, shopping, making dinner. All the while, feeling like I am in the twilight zone. Everyone is going about their day, and will never even come close to knowing what this feels like. To be happy and sad. To be laughing one minute and crying the next. To be laughing about the silly things that husbands do for their wives, and then remember the silly things we did to my dad when we were little, then to sobbing because Steve will never know what it's like. He will never know what it's like to have a tea party with his daughter, or for her to want to paint his nails, or wear funny hats, or dance with her. Yes, maybe someday we will have another daughter, but he will never have any of these memories with Harper. The only thing we have are kicks, hiccups, heartbeats.

It is difficult to not feel completely alone. Joey and I go to play dates. The kids play, the moms talk. I just feel alone. None of them can understand, and I don't want them to. I don't want anyone to be a member of this horrible, awful "club". I have been to a support group for pregnancy/infant loss, and while I know these women understand my pain, I still don't feel connected to any of them. We tell our stories, we talk about where we are now, and I walk out of the building alone.

I want to talk about my baby, about what we are doing to remember her. I want to show people her pictures, but I know they don't want to see pictures of a dead baby. I even hesitate to show them to my family. Her nose was a little smooshed on one side, and her skin was a little blotchy, just like any newborn baby's is. But it is just a shell, there is no life. Her spirit is in heaven.

I know my God is with me. I know I am not really alone, even though I feel like I am sometimes. He is still on His throne. He sees all my tears. Psalm 56:8 says, "You keep track of all my sorrows. You have collected all my tears in your bottle. You have recorded each one in your book".

I know my Jesus is with me and He feels my sorrow. In John 11, Jesus came to the tomb of Lazarus, and He wept (v.35). Even though He knew He would raise Lazarus from the dead, He still felt the sorrow of death. I know I will see my baby girl again, because of the death and resurrection of Christ, and until then, she is safe in His arms.

Wednesday, July 31, 2013

Disappointments and blessings

Harper's due date was August 10th. With it being just around the corner, I feel such strong feelings of disappointment. We will never hear her cry, see her smile, laugh, take her first steps, hear her first words. I have so many friends that will be welcoming new babies in the next month, and while I am happy for them, I am so disappointed that I will not be sharing this experience with them. I am not angry, or jealous, I am disappointed.

Thinking about these feelings takes me back to the time in my life before I met Steve. I had such a desire to be married, to be a wife and maybe, someday, a mother. I dated here and there, but nothing was ever serious. I saw so much potential, and was always hopeful, but nothing ever worked out. If only x, y or z, this person would be perfect, why would it never work out? I prayed and prayed for God to send me a husband. I prayed for this man that I had yet to meet, but was confident that I would. Someday. Then, in December, 2009, my prayers were finally answered.

Steve is the most caring, patient, loving, smart, easy-going man I have ever met. Before Steve, when I thought of the perfect guy, my dreams could not even come close to how wonderful he is. I've never been afraid, emotionally, with him. He makes me feel safe. All the time. Even now, almost four years later, I still have a hard time believing that I am so lucky. God had the perfect husband for me, and He brought us together at the perfect time. Even during this horrible time in our lives, I know that I am blessed beyond measure.

I went through years and years of disappointment, of wondering why, of feeling sorry for myself, and now I know why. What I thought was so awful at the time, was really a great blessing. Being without my baby girl is probably the biggest disappointment I will ever face, but I trust Him. I trust that He has a plan, and my husband does, too. We know that we will be blessed with more children. God promised us more than just Joey, and I believe Him. We don't know when or how this blessing will come, but we know that it will. Someday.


Wednesday, July 24, 2013

I am still standing

Our summer women's Bible study at church is on Your Beautiful Purpose by Susie Larson. I missed the first 2 weeks, first due to Steve being out of town, and second, because I had just had Harper the day before. I was excited about doing a summer study, as most activities that we attend during the school year are on break for summer. I wasn't sure what the format of the study would be, but I decided to go for the third session. It was not easy. I tried to hold it together during worship, but the tears just streamed down my face. Although I don't play an instrument and definitely have not been blessed with a singing voice, singing is when I feel closest to God.

I only saw a couple of familiar faces that night, none of my friends were there. I was sitting by myself in the sanctuary, waiting for the study to begin, and a woman sat down next to me and said hello. I was grateful to not be sitting by myself anymore, but terrified of having to say anything. Luckily, the small talk did not involve children, and the study began. We sang a couple of songs, and then it was time for the speaker of the week. We then watched a video on the part of the book we would be discussing, and broke up into small groups. I went with my new friend to a table, and sat down next to more unfamiliar faces. Then, it was time to go around the table and tell a little about yourself. I knew I would have to tell what had happened, and I was going to cry in front of these strangers. I managed to say very little and explained that I may not be able to share much because we had lost our daughter a couple of weeks ago.

Everyone was very understanding, and compassionate, and they prayed for me before we started our discussion. There were a few times where I could've contributed to the conversation, but did not, because I didn't want to cry again. I did manage to say something at the end, but nothing worth noting. There was more prayer at the end, and then it was time to go.

The next week, I thought I was doing better. I completed all the homework questions ahead of time, I had not cried all day that day, and got through worship without crying (it would not be unusual for me to get teary eyed during worship before this happened, but the reason for it now made it uncomfortable for me). My friend from last week and another lady from our table were sitting with me, and we headed over to the table we sat at last week. There was a table nearby that only had a few people, so the leader and the other ladies came to our table. Great. More unfamiliar faces. I decided not to mention anything about Harper this time, as most of the women knew. I talked about how I was from upstate New York, and it was my son's 2nd birthday tomorrow. Discussion started, and I just didn't have anything to contribute. The leader from the other table asked if I had anything I wanted to share. I said "not tonight". I immediately looked down, my face turned bright red, and I was trying so hard to keep it together, but I couldn't. I was sobbing.

The grief and sorrow comes in waves, and without warning. As quickly as it starts, it can stop, or it can go on for hours, or the entire day. As I was trying to read the chapters for the next week, I was very distracted, thinking I cannot relate to this book right now. I am not in a place in my life where I'm trying to discover my purpose. But God can speak to us in moments where we don't think He has anything for us.

Yesterday, as we watched the video for this week's discussion, the author of the book said several times, "I am still standing". There were more new faces at my table this week, and I was able to say that I had a 2 year old son and had lost a daughter last month without crying. One of our discussion questions was, "what stood out to us in the video"? I blurted out, "I am still standing"! And I am, but only through the grace of God. It is not from my own personal strength. It is from God holding me up when I can't stand. It is from the prayers of people who don't even know me and those that love me. It is from the texts, emails, and phone calls. I am so grateful for everyone that has read my blog and sent me a message or a comment about it. I know that I have a purpose, and that Harper's death will not be for nothing. My greatest wish is that God would be glorified through my life and that my baby girl will not be forgotten.

I want everyone to know that all of your thoughts, prayers, and messages mean so much to me. I may not be able to respond in a timely fashion, or at all, other than to say thank you. Please know that thank you doesn't even begin to cover it. This is an emotionally draining time, and quite honestly, I am exhausted, and sometimes just don't know what to say. I have all of these thoughts in my head, but just can't always find the energy to say or write them. I find it easier to get some of my thoughts out in this format, but I will get better with responding to you with time. Just be patient with me.

I can do all things through Him who give me strength - Philippians 4:13

Saturday, July 20, 2013

Ramblings, results, and "just be"

It has been 4 weeks since she left. Harper left us sometime on Saturday, but the hardest day of the week seems to be Friday. Friday she was still alive. Kicking away like she always did. Moving when she always did. On Friday, I was still naive, thinking about how I would handle having 2 children. When would the nursery be done, would we have everything ready, would we have her at home like we planned? All of the planning was for nothing, God had different plans. We are not promised anything, so we have to make every moment count. Worry, fear, and anxiety about what's to come will not change anything, and will just rob us of the joy that can be today.

Back in February, I was worrying a lot. I wrote down all of my pregnant fears. At the top of the list was miscarriage or stillbirth. My worst fear came true. What do I do with that? If I think about what my worst fear is right now, it is that Steve or Joey will be taken away, too. I can let this fear rule my life and steal my joy, or I can give it to God and love my husband and my son and cherish every second that I have with them. I choose the latter.

In the last week or so, I have been doing a little research about cord accidents. I came across a blog by a mama who also lost her child to a cord accident, and she mentioned Dr. Jason Collins. I googled him, and found that he was in New Roads, only about an hour from where we live. Dr. Collins is one of the few doctors in the country that researches cord accidents. I found the website for his non-profit, the Pregnancy Institute, and it had his e-mail address, so I e-mailed him, not knowing if I would ever get any response. To my surprise, he responded. We were able to speak on the phone this week, and his advice for any future pregnancies is to have ultrasounds every 2 weeks starting at 28 weeks, to check for any possible cord problems.

Yesterday, I had my follow-up appointment at the OB. I was nervous all day, because I was fairly certain that the office people would have no clue that I wasn't pregnant anymore, and didn't want to have to go through telling them. Luckily, both my HB midwife and my husband called ahead to let them know. The OB told us that the official cause of death was a "true knot" in the cord. She said that the knot was very tight, and would have cut off her blood supply. We did not have an autopsy or any testing done on Harper, because we felt that it doesn't change the end result. The hospital also took 12 tubes of blood from me while I was in labor, to test for various other problems, and all of those tests came back normal.

OB also told us that if we were to get pregnant again, I would be labeled as high risk, and would receive weekly ultrasounds and BPP's (biophysical profile - test to see how baby is doing) starting at 30 weeks. She said we can try again as soon as we are ready, and that I am healing well physically. I'm not sure what to do with that. I fully expected her to tell us we had to wait 6 months. Now I feel like it's all on me - if we had to wait for my body to heal, or because the doctor said so, it would almost be easier.

I do want to be clear about one thing. I do not blame myself, or anyone else that this happened. If I had been under the care of an OB instead of my HB midwife, the outcome would have been the same. I would not have received any additional ultrasounds during the pregnancy, because I was low risk, and because I hated them (they always made me nervous when I was pregnant with Joey). My HB midwife was wonderful, and went above and beyond to stay with me and drive me to the hospital and just sit with me and talk.

When I went to Bible study at church this week, one of the women told me that God told her to tell me to "just be". That is good advice. I need to stop obsessing about the future and just be in the moment and be OK with where I am.

Wednesday, July 17, 2013

3 weeks, part two

I've been putting off finishing this part of the story.  Like, if I don't finish, it somehow didn't happen.  But it did. June 23, 2013

I didn't get much sleep, maybe an hour. My son is up at his usual 6:30ish time. We get him dressed and ready to go. Waiting for the neighbor to come get him seems like an eternity. I am anxious to get to the hospital and get things going. My midwife wakes up and goes home to shower and says she will meet us at the hospital. Neighbor comes to get Joey, we give her nap and bedtime and dog feeding instructions, just in case (good thing we did). We are on our way to the hospital.

Trying to hold it together at check in for L&D. Wondering if they know that my baby is dead. I sign some papers and they buzz us in, and take us to a room. It's hot, the AC isn't working properly. I get changed into the hospital gown and wait for the nurse.  Nurse comes, she asks all the standard questions, she is nice, but I'm still apprehensive about being in the hospital. Hospital midwife comes in, sits with me, hugs me, lets me cry for a few minutes. I'm so grateful for that. She explains that we will start the induction with cytotec, to help ripen my cervix, and then switch over to pitocin. I say ok, but I am not excited about the pitocin. I had it with my son, and don't want to do it again.

I get my first dose of cytotec at 10 am. It causes some contractions, but nothing really painful. Nurse is in and out to check on me. People from church are coming in to pray with us and visit throughout the day. These people don't really know us. We have only lived here for 8 months, and it is a fairly large church. We are so grateful for these wonderful people, to come and spend time with us, to text, e-mail, and call us, to take time away from their families and lives to serve us. It helps pass the time and keep our minds off of the sorrow of the situation.

I received my 4th dose of cytotec at 11pm. I am exhausted. Nurse gives me a shot of morphine to help me rest and says she won't bother us again until 6 am, but to call if we need her. My home birth midwife goes home to rest for a few hours. At 3 am, I am starting to get uncomfortable, and tell my husband it may be time to switch to the tub room (there are only 2, and were not available when I first got there). Steve alerts the nurses and my HB midwife. Shortly after that, my water breaks. I am 5 cm dilated and we move into the tub room. I get into the tub around 3:30 am. The water is the temperature of a hot tub, which is making me sweat. HB midwife puts cold washcloths on my neck and forehead. We all watch TV and talk in between contractions. When things start to get more intense, I ask my husband to turn off the lights and put David Crowder music on. The contractions get to a point where I am starting to vocalize, and I ask my husband to turn the music off.

I am still so calm, and have been through the entire process. Only through the grace of God. When I think back about it, I cannot even fathom how I got through it. Praise God for His grace. Now I am starting to feel constant pressure. My HB midwife knows I am in active labor, but didn't realize how close I was to pushing. Then, I feel PAIN and the urge to push. I start freaking out and screaming and pushing. HB midwife runs out of the room to get the nurse and hospital midwife. People are telling me I have to get out of the tub and get in the bed. I tell them I cannot. This goes on for what seems like forever. Then my HB midwife tells me I have to stand up. I say I can't, but I do. She give me simple instructions about HOW to get out of the tub and get over to the bed, and with the help of my husband, I am able. Harper is breech, and coming out feet first. After half an hour of pushing, she is out. It is silent. No baby crying. I am numb emotionally, but in pain physically.

When she is delivered, we know right away why she died. Her cord was wrapped around her neck 4 times, around her arms and knotted. My poor baby. I wonder if she suffered, if she was in pain. They ask if I want to see her. Steve says she doesn't look bad. I just can't do it yet. The nurse gives me percocet for my pain after the placenta is delivered. I wait a little while to calm down, then I say I am ready to hold her.

She is perfect. 3 lbs 14 oz of perfection. My precious baby girl. I am sobbing. I hold her for a long time, kiss her face, and cry. Steve holds her for a little while after that, then the nurse puts her back in the bassinet. One of my HB midwife's students is coming to take pictures for us, as she is also a photographer. It sounds morbid, to take pictures of your dead baby, but when it's happening to you, I assure you, it is not. It is the only thing we will have to remember her by. The nurse dresses her in a beautiful little white gown with purple ribbon (made by the wonderful ladies from Threads of Love) and places her in a beautiful basket with a white pillow and white lace all around it. Photographer is taking a few pictures, then they leave us alone with her. I see her perfect little hands and feet. She has the stretchy hospital hat on her head, so I can't tell if she has any hair or what color it is. Photographer comes back and take more pictures. She is so sweet and gentle with us and our baby. After pictures are over, we are left alone to be with our baby again.

I am informed that I have to pee 3 times before I can be discharged. I am anxious to get home to my son, and am feeling pretty good physically. We are discharged at 2 pm, go to the drugstore for Aleve, Advil, and Benadryl, and head home.

The next few days are a blur. Thankfully, my amazing husband handled all the funeral arrangements, mostly while we were still at the hospital. Family starts arriving the next day. It is a welcome distraction. The funeral is on Thursday, June 28th. We decide to have it at the funeral home, so that we don't think of Harper's funeral every time we go to church. On Wednesday night, we go to the funeral home so that we can see her. All of our family goes with us. I am grateful that they get to see how beautiful she is. She looks like a perfect little doll in a box. It is so sad. No one should have to bury their baby. I know it helped with their grieving process, though, to be able to see her.

People from church are bringing food over every night. We are so blessed. Thursday comes. Trying to figure out what to wear to your baby's funeral is cruel. Steve's brother does the funeral. He is a pastor, and does a wonderful job. God has blessed him with such a gift, and it meant so much for someone who knows us and loves us to do her service. The worship leader from our church is able to rearrange his schedule and play 3 songs at the service for us. He does not know us, but he is a familiar face and voice, and we are forever grateful that he could play and sing for us. Worship music is extremely important to both of us.

I decided that seeing her be buried would just be too much for me, so we go home. All of our family has gone home by Sunday morning. Steve works from home the following week, and then the new reality begins.